Sunday, May 22, 2011

You can eat your mistakes

Friday night, William and I headed to St. Thomas for a crepe making class with other auction winners.  Our able and entertaining guide talked about her year in Lyon, France.  It is difficult to think about France and not think gastrinomic thoughts.  From her descriptions of the tinniest kitchen to the luscious crepe stands, we were ready to give it a go.

Houlder too loved the crepes he had in France last year.  He was bummed this winter when his head ache kept him from the day in French class he missed out on the crepes.

One of the sweet ideas that Susan shared with us is that "You can eat your mistakes."

There must be few places in life when one can say that and not be too terribly disappointed -- I mean a messy ill-presented chocolate and almond crepe remains yummy in the tummy no matter its presentation.

I just wonder how people digest medical gaffs.

Not really gaffs but quitting before the roast is cooked.

UVA's Dr. Rust has said that Houlder does not fit into the parameters of what he studies and has recommended the Mayo Clinic.

I've learned the land of 10,000 lakes has some pretty wicked mosquitoes. 

The doctor that MCV heard from is also at Mayo.  The doctor UVA recommended at Mayo has published an article the other doctor.  They have studied headache and POTS -- postdural othrostatic tarchycardia.

You see, despite our requests for cardiology int he hospital, we were told we did not need it.  But, as you can guess, Houlder has been having racing heart rates, wacky blood pressure and even newer and more fun to sit through and not freak out about -- chest squeezing.

I have shared with the doctors in the hospital that my kid is complaining about his chest squeezing.  My favorite answer, "Well he has not been active.  Maybe standing up is too much." 

An EKG after the incident shows he is fine.

Of course an EKG also said Frazer's heart was fine until the doctor using that ultra radically new technology -- the stethoscope -- heard something.  Then an echocardiogram gave the doctors the answer the EKG could not.

Not that this fact is relevant.

I aspire to avoid cyncism but cannot claim to be frustration-free.

So, if we can avoid an ER visit despite having 3 episodes of chest squeezing yesterday, we go to the cardiac surgeon on Wednesday.

I will call Mayo tomorrow.  I research what it will be like today.  I hope to see both doctors that we were referred to.

I wish that I had thought 10 week summer camps were a great idea instead of SRA because I am not sure what we will do with three other children. 

But, we do love SRA and swimming starts tomorrow.  God willing, four Hudgins boys will spend an afternoon freezing their hinneys off to see their friends and coaches and hold onto a glimmer of normal.
For strength and honor
Cause in the pool, we don't eat mistakes, people eat our bubbles.  Hope we have some doctors out there ready for snack time.

1 comment:

  1. Hey--You were supposed to bring me back a crepe!

    Nice connections in this blog. The really good news is that this time you have several sources which point towards a unified diagnostic condition which incorporates most if not all of Houlder's symptoms. The good/bad news is if Houlder's POTS were the result of one of his growth spurts the condition might dissipate naturally -- but when he is in his 20's!! Hopefully some of the treatment options will reduce that time significantly.

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