Tennesse Bound Despite Abated Headache

Dell

In a nut shell, nothing has followed script.

On June 10th, Houlder received botox to stop the headache.  Yes, paid cold hard cash to a neurologist in Bethesda for that gem of a treatment option. 

He came home and felt worse than he had felt -- ever.

Slept almost non-stop for 48 hours. 

Had four cardiac incidents in 12 hours, headed to cardiologist and wore a holter monitor to take 24 hour worth of ekg readings.

8 days later with a still intense headache, he could not help himself and swam a partial practice with SRA.

10 days after Botox, Houlder still had headache but decided to swim back stroke at the meet.  He had not been in pool except for this partial practice.

I am glad to say that he lived. 

And at this meet, William spoke to one of our neighbors who also teaches at Collegiate.  William mentioned how we had been looking to get to Vanderbilt.  Well, her brother-in-law is a caridologist at Vanderbilt.  Vanderbilt which has one of the best and most comprehensive autnomic diagnosis and treatment centers in the country.  A neighbor. 

The night was beautiful. 

Good news. 

Hope.

And five weeks after Frazer's surgery, he swam in two events.  Really, some of the medical stuff has been stupefying.

Frazer shaking hands

A week later, I had an appointment.  The appointment would be in 2 weeks (July 12 and 13 as a start). 

Okay.  Amazing.  Flat out unbelieveable.

Another friend was headed to Mayo in MN and texted to see if she could take anything out for Houlder.  She left with two binders.

A tilt table test administered by an old friend who we were in a babysitting co-op with. 

The world felt small and intimate,  but still no answers.

A friend secured the option of going to California to see a doctor about retro-viral illnesses.  In medical terms, we were looking for zebras.

And in the mean time, the headache has abated.  It returns multiple times a day.  He often almost passes out, but he has been to two more swim practices and seen the doctor at UVA again and is having an MRI on Wednesday. 

Vanderbilt has called twice to inquire and has read his binder.  Today they called to move his appointment ahead one day to add in more testing before the meeting with the doctor.

Mayo friend called.  Doctors say just go through ER.

Whacked out medical system.

I think we can put the 10,000 lakes on hold and the Commodores are looking good.


http://www.youtube.com/watch?v=HIRGNzVIz6Y

Porter